It was my birthday in February, 2000. My mom was exhausted after baking a special cake for me. She’d taken some cake decorating classes and was quite the artiste when it came to decorating. She made me a killer Hello Kitty cake – it was awesome. But she was SO tired at the end of the day, more tired than I’d ever seen her. She was on oxygen 24/7 by now, more than ever before. She hated the cannula (the part that fits under your nose for oxygen to flow in) and yanked it off every time we took pictures of her and the baby. She didn’t want us to remember her that way.
She wasn’t able to go with us to the museum in Raleigh and stayed at home instead. She was too tired to help bathe the baby or do anything strenuous and when I left I realized the trip wasn’t as nice as it could have been.
I returned to Colorado, worried but I put it out of my mind. How many times had we heard she was really really sick, or that things were taking a turn for the worse? This surely was another short-term setback; she’d be fine soon enough. I went back to my troubles in my own life and got a job to help get my mind on better things.
In August I got a call that she was very ill. My dad was leaving for work at 6 am and returning home around 8 or 9 pm to take care of her through the night. My brother would help as he could during the day, but he was busy with his own work. I decided I’d come out with my daughter, now 15 months old, and I’d help take care of her. At first I wasn’t “allowed’ to, but after begging and pleading to help care for my mom, my husband consented to let me go.
I was shocked by what I saw. To this day these memories have been as painful as the original experience, and I hope with time, and retelling our story, that the pain will lessen and that I can focus only on the good times.
My mother was practically immobile. She sat in a wheelchair or some other chair in the living room. She was unable to sleep in her bed, it was too painful and uncomfortable. She had water developing in her lungs, her heart, and her body puffed up with the water which would sometimes seep out of her pores. It was horrible.
We had to bathe her in a chair in the bathroom, she had to use a potty chair to use the toilet. She was humiliated and embarrassed to say the least.
One day she was trying to rest in the guest room while I cleaned up some dishes. I heard a crash and ran to the room to find her on the floor in a seizure, her pill tray knocked over and her medicines spilled all over the floor. Two feet away was my 15 month old, hand reaching for the brightly colored pills. I didn’t know who to grab first or what to do. I grabbed my daughter, shoving her out of the room while calling to my mom. My mom came out of the seizure, unaware of what happened, and I helped her to her bed. She assured me she was fine and I realized my mom was really sick this time. I didn’t know what to do or what to say. How do you begin to prepare yourself to walk down the path where there is no life at the end? How do you spend the final weeks, days with someone you know will soon be gone?
I would lay in bed at night, listening to my mom cry out in pain as my dad tried to bathe her. I was so mad. I cursed God for being so horrible to treat her this way, after all the years she’d shared her faith in Him, her belief in Him. He was cruel, unkind and unfair. I told Him that if He didn’t heal my mother or relieve her of her pain soon, then I’d never tell my daughter about Him, I’d never allow her to set foot in a church to worship such a loveless being.
A few days later, I got a phone call from Colorado. My husband was having an affair, there was mention of a pregnancy, and all at once my world as I knew it was as bad as it could possibly be. My brain paused all that was around me. I think I could have wandered into a busy street and not have realized it I was so upset.
I had to go back to Colorado. I wasn’t equipped for this hardship. I couldn’t take care of my mother. I couldn’t administer the new drugs directly into her heart through a experimental procedural machine thingie that my brother was trained to help clean up and monitor. I didn’t know what to do if she had another seizure. She was in and out of the hospital, I couldn’t take it anymore. And now this other mess, what to do?
I left her is what I did. She begged, she pleaded, she threatened. She even said if I returned she’d have social services come after me for bringing my daughter back to Colorado and back to the unknown. I told her I’d never speak to her ever again if she did. It was horrible. But I left.
We didn’t talk much. I moved in with a friend for a few weeks til I got my head on straight.
I was at Wal-Mart on the morning of September 30th when I got the phone call.
My mom was dead.
I wasn’t sure how it was possible, maybe she was asleep. Why do our brains think that it is possible to receive a death notification as an accident?
I’d just talked to her a few days before. She was out of sorts, unfocused. She hadn’t slept for days and I was mad that she didn’t sound interested in our conversation. The last thing I ever spoke to my mom was “Why don’t you call me back when you aren’t so busy with something else?”
She was afraid of being alone when she died. We promised her she wouldn’t be. But even my dad and brother needed SOME sleep, and one night while she was in the hospital, they left. The doctor’s gave her some medicine to help her sleep. At some point in the early hours of the morning, her lungs filled with water and she pretty much drowned in her sleep. Alone.
Somehow I made it back to North Carolina. Somehow we made it through the wake and the funeral. Somehow we made it through the awful realization of what had happened. It was fast, so fast. Surely for her it was not fast enough: the pain, the medicine, the horribly painful procedures and tests that left her sore and bruised for days. The apathy her family had for her condition, how we thought it was just another bad round that would end up just fine.
Somehow we made it through those days, weeks, months. Somehow we still make it through the years.